Genomic Data Sharing: Case Studies, Challenges, and Opportunities for Precision Medicine
By Jennifer B. Mccormick, Jyotishman Pathak
Genomic Data Sharing: Case Studies, Challenges, and Opportunities for Precision Medicine provides a comprehensive overview of current and emerging issues in genomic data sharing. In this book, international leaders in genomic data examine these issues in-depth, offering practical case studies that highlight key successes, challenges and opportunities. Sections discuss the eMERGE Network, Undiagnosed Disease Network, Vanderbilt Biobank, Marshfield Clinic Biobank, Minnesota Authorization, Rochester Epidemiology Project, NIH sponsored biobanks, GINA, and Global Alliance for Genomics and Health (GA4GH). In addition to these perspectives from the frontlines, the book also provides succinct overviews of ethical, legal, social and IT challenges.Clinician investigators, clinicians affiliated with academic medical centers, policymakers and regulators will also gain insights that will allow them to navigate the increasingly complex ethical, social and clinical landscape of genomic data sharing.
Are you interested in learning more about genomic data sharing and its role in advancing precision medicine? Look no further than the book “Genomic Data Sharing: Case Studies, Challenges, and Opportunities for Precision Medicine” by Jennifer B. Mccormick and Jyotishman Pathak. In this comprehensive and insightful book, the authors delve into the current and emerging issues surrounding genomic data sharing, providing practical case studies, highlighting successes, challenges, and opportunities.
Genomic data sharing has become increasingly important in the field of precision medicine, as it allows researchers and healthcare professionals to analyze large datasets and identify patterns that can lead to more accurate diagnoses, personalized treatment plans, and improved patient outcomes. However, with the numerous ethical, legal, social, and technical challenges involved, it is essential to understand the nuances of genomic data sharing.
In this book, the authors provide a deep dive into various initiatives and networks that have successfully implemented genomic data sharing. They discuss the eMERGE Network, the Undiagnosed Disease Network, the Vanderbilt Biobank, the Marshfield Clinic Biobank, the Minnesota Authorization, the Rochester Epidemiology Project, NIH sponsored biobanks, GINA, and the Global Alliance for Genomics and Health (GA4GH). By examining these case studies, readers gain valuable insights into the practical aspects of genomic data sharing and how it is being implemented in real-world scenarios.
What sets this book apart is its balanced exploration of the ethical, legal, social, and IT challenges associated with genomic data sharing. The authors understand the importance of addressing these issues to ensure that privacy, security, and informed consent are safeguarded throughout the process. By offering succinct overviews of these challenges, the book equips both researchers and policymakers with the knowledge needed to navigate the complex landscape of genomic data sharing.
The authors, Jennifer B. Mccormick and Jyotishman Pathak, are internationally recognized experts in the field of genomic data sharing. Their extensive experience and deep understanding of the subject matter shine through in their writing, making this book a valuable resource for anyone interested in the field of precision medicine.
Not only does this book provide a wealth of knowledge and insights, but it also promotes the importance of genomic data sharing for advancing precision medicine. It emphasizes the potential impact it can have on patient care, highlighting the importance of collaboration and sharing data to drive innovation and discovery.
Whether you are a clinician investigator, a clinician affiliated with an academic medical center, a policymaker, or a regulator, “Genomic Data Sharing: Case Studies, Challenges, and Opportunities for Precision Medicine” is a must-read. It will expand your understanding of genomic data sharing and provide you with the tools necessary to navigate the ever-evolving landscape of precision medicine.
Order your copy of “Genomic Data Sharing: Case Studies, Challenges, and Opportunities for Precision Medicine” today and join the growing community of healthcare professionals and researchers who are shaping the future of precision medicine through the power of genomic data sharing. Expand your knowledge, advance your practice, and contribute to the exciting progress in precision medicine.
Product Details
- Publisher : Academic Press (16 Dec. 2022)
- Language : English
- : 230 pages
- ISBN-10 : 0128198036
- ISBN-13 : 978-0128198032